Donation
For Noah

Help and give Noah a better quality of life

His his big brother is Noah's role model: the way he dashes across the ice as an ice hockey player the ice, shoots the puck into the goal and celebrates success with his team. How noah would love to emulate him and be on the ice too. But the 8-year-old is affected by the rare disease "Duchenne muscular dystrophy" and will gradually gradually lose all his muscle strength. With an electric wheelchair Noah could come closer to his dream and play in an e-hockey team.


E-WHEELCHAIR - SO THAT NOAH CAN PLAY HIS FAVORITE SPORT

Already Noah's start in life was dramatic and sad: four days before his caesarean section noah's identical twin brother died in his mother's womb. Noah fought to life and survived. After two months in the children's hospital, he was finally allowed home. However, his joy was suddenly shattered - the newborn suffered a cardiac arrest at home suffered a cardiac arrest at home and only survived because he was resuscitated by his father. And as if these strokes of fate were not were not enough, Noah's parents received the devastating diagnosis of muscular dystrophy for their then three-year-old son Diagnosis of "Duchenne muscular dystrophy", also known colloquially as muscle atrophy colloquially referred to as muscle wasting. The disease results in the intermittent breakdown of the muscles and sooner or later leads to complete paralysis of the extremities.



NOAH'S FAMILY THANKS YOU FOR YOUR DONATION

Since Noah took part in an e-hockey game at the "Loveride" charity event, passionate about the sport and only wants one thing more: to play himself to play himself. Sport is hugely important for his development and his body, it also boosts his self-confidence. Since last autumn, Noah has been attending the Mathilde Escher Home, which specializes in caring for children, teenagers and young adults with Duchenne muscular dystrophy. Noah could also play e-hockey here in the future. His parents say: "Noah is a fighter and such a positive person. We would be incredibly happy if we could make his big wish come true".

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Support association for children with rare diseases
Around 350,000 children and young people in Switzerland are affected by a rare disease.

Everyday life for these families is characterized by uncertainty, especially when there is no diagnosis yet. The Support Association for Children with Rare Diseases has been committed to helping affected children and their families since 2014. We provide direct financial support, create free family events (more than 2,200 family members were able to take part in 2019) to connect affected families and raise awareness of rare diseases among the general public. We rely on donations, legacies and patronage contributions to make this possible in the future.

Link KMSK donation flyer