Self-help group
24 STD. EXCHANGE AMONG THOSE AFFECTED ON FACEBOOK
In our closed Facebook group, we connect more than 855 affected families with each other. We offer them a protected platform to share their experiences, seek advice and exchange valuable tips. This makes parents feel less isolated and understood by the warm community. Our digital self-help group on Facebook is the right place for all topics related to dealing with rare diseases. Only parents of children with rare diseases are accepted into the KMSK support group.