Knowledge about rare diseases
A major challenge when it comes to rare diseases is often the lack of knowledge about individual diseases or the topic as a whole. For this reason, we collect the most important and informative publications on the subject of rare diseases and make them available here free of charge.
Rare diseases - facts & challenges
The publication of the VIPs Association of Pharmaceutical Companies in Switzerland provides an insight into the lives of people affected by a rare disease. Exciting facts about the diseases, research and medicines are illustrated in an understandable way and explained in detail. The foreword was written by Ruth Humbel, President of IG seltene Krankheiten.