Help for

Self-help

KMSK Rare diseases knowledge platform in German, French, Italian and English

On our comprehensive KMSK knowledge platform affected parents and specialists can find relevant information on Contact points, specialists and support services - clearly laid out and regardless of the child's medical diagnosis.

The KMSK knowledge platform shows the new path that affected families have to take after (and even without) a rare disease diagnosis. The comprehensive knowledge platform serves as a central point of contact to simplify the search for Simplify the search for information on the future path of life. It provides concrete Assistance on who to turn to in the social and healthcare system with which should turn to with which concerns.

Our primary goal is to provide (newly) affected Families with this information service so that they can take care of all the organizational, administrative organizational, administrative, psychological and financial challenges with less effort Challenges with less effort.

For professionals, the knowledge platform offers a comprehensive reference work that helps them in their work with affected families Help them in their work with affected families.

Use this important tool and recommend it to other affected families and professionals.

Thank you very much!

Manuela Stier
Founder and managing director
Support association for children with rare diseases