Team
with heart

Proximity to the families concerned

We know the needs of the families concerned and use this knowledge to efficiently implement new projects that offer great benefits for the families families and generate a lasting impact.

Manuela Stier, founder and managing director

manuela Stier founded the charitable support association for children with rare diseases in 2014. The association's current success is based on the fact that she is very close to the families affected and therefore knows their needs. Together with her fantastic team, she consistently implements projects that must bring lasting benefits to the families affected. As a branding and communications expert, she anchored the "Förderverein für Kinder mit seltenen Krankheiten" brand throughout Switzerland to give the affected families a face and a mouthpiece. the first KMSK knowledge book "Rare Diseases" was published in 2018 and the KMSK team is currently working on the sixth KMSK knowledge book "Rare Diseases - Case Management and Digitalization Relieve Parents" together with affected families and specialists. In November 2022, after two years of development, the first KMSK knowledge platform for (newly) affected families went online in German, French, Italian and English.

in 2022, Manuela Stier won the Viktor Award as the most outstanding personality in Swiss healthcare.

"Without the support of the affected families, the great team, the competent board and advisory board, the volunteers and the patrons, we would never have been able to achieve all this! Thank you very much!"

Founder and Managing Director since 2014 (not a member of the Board)

Podcast with Manuela Stier Link

Picture: Manuela Stier at a KMSK family event with Mia, left heart syndrome and Fiona

Elfete Ramadani, administration and project organization

Elfete Ramadani has been supporting the Managing Director in administration and project organization with great enthusiasm since 2023. As the mother of a 10-year-old daughter and a 19-year-old son, she understands the concerns of the families affected.

Michelle Sieber, Communication and Marketing

Michelle Sieber joined the Communications and Marketing team in August 2023 with great enthusiasm. As a former child affected by a rare disease, she understands the concerns of families.