Donation
For Noemi

Help us: Give Noemi joy and her mom relief

The things that 5-year-old Noemi has had to go through in her young life has had to go through is hard to imagine. The girl was born in the 32nd week of pregnancy born weighing just 1490 grams. At first, Noemi seemed to be developing well initially, Noemi seemed to be developing well, but her mother was worried about her feeding difficulties. "I already had the feeling during pregnancy that my daughter wasn't healthy healthy. The doctors said the opposite," recalls Désirée. Over time, more and more more and more abnormalities became apparent, Noemi was severely underweight and had conspicuous spots on her body. It was months before further examinations were finally were finally carried out, it took months. Diagnosis: neurofibromatosis type 1 Hit Noemi particularly hard: she now has a large inoperable tumor in her head Tumor in her head.

Noemi's story in the first KMSK knowledge book "Rare diseases" Link

Relief for this single mom

What Desirée has had to go through is almost unbelievable. She had to fight several times she has had to fight for examinations from doctors several times, her Fears were not taken seriously and she was let down financially by the IV. So not only does she live in constant fear for her little daughter, she also has financial worries and a guilty conscience that she cannot give her older daughter enough attention. Family who could support her désirée no longer has any family to support her. The young mother is completely on her own.

Noemi's mom thanks you for your donation

At the same time, Désirée is an impressive Mom - she fights tirelessly for the well-being of her girls, showers them with love Love and tries to give them as normal a childhood as possible.

The fact that the 28-year-old forgets herself far too often forgetting herself has already been her undoing in the past. The Consequence: acute fatigue syndrome. It is therefore all the more important that she and can devote all her energy to her daughters. Noemi, on the other hand noemi, on the other hand, wants so much to be able to continue riding her beloved ponies to take her mind off her upcoming chemotherapy. Désirée and her daughters thank you from the bottom of their hearts for your help!


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Support association for children with rare diseases
Around 350,000 children and young people in Switzerland are affected by a rare disease.

Everyday life for these families is characterized by uncertainty, especially when there is no diagnosis yet. The Support Association for Children with Rare Diseases has been committed to helping affected children and their families since 2014. We provide direct financial support, create free family events (more than 2,200 family members were able to take part in 2019) to connect affected families and raise awareness of rare diseases among the general public. We rely on donations, legacies and patronage contributions to make this possible in the future.

Link KMSK donation flyer