Donation
For Melina

Help and give Melina a better quality of life

Melina is severely disabled and needs oxygen 24 hours a day. She has been on the brink of death more on the brink of death. But the 5-year-old is a little lioness and keeps fighting her way back to life. At first, everything looked so good and the family of five was looking forward to welcoming their little bundle of joy. Signs that there was nothing wrong with their daughter during the pregnancy. Only after the birth it became apparent that Melina had severe disabilities. Diagnosis: 8P23DELICION-SYNDROME. It is uncertain how Melina will develop and what her prognosis is. The family has one big wish: a cargo bike so that they can take Melina on her beloved bike rides.

Melina's story in the third KMSK knowledge book "Rare diseases" Link

Valuable family time for Melina

The joy was written all over Melina's face when the Förderverein für Kinder mit seltenen Krankheiten was able to fulfill a very special, early Christmas wish for the family of five at the end of November: Mobility for Melina! Until now, the little girl always had to stay at home with one of her parents when the other family members roared off on their bikes.

Melina's family thanks you for your donation

It was not financially feasible for the family to buy a cargo bike that would meet Melina's needs. In the meantime, the special bike has been financed thanks to donors. For Melina's family, every day counts, as they never know how Melina's condition will develop. "We're really looking forward to the trips as a whole family," says Vreni, Melina's mother. And Melina can hardly wait to set off with her parents and siblings.

The special bike (CHF 10,000) was 100% financed as at 3.12.2020 thanks to donors and benefactors. We thank you from the bottom of our hearts.

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Would you also like to start a crowdfunding project?

Are you registered in our KMSK Family Network and would like to improve the quality of life of your affected child with the help of crowdfunding?

We support you and offer you our platform to realize your crowdfunding project in just a few steps. Click here for the registration form: Link

Support association for children with rare diseases
Around 350,000 children and young people in Switzerland are affected by a rare disease.

Everyday life for these families is characterized by uncertainty, especially when there is no diagnosis yet. The Support Association for Children with Rare Diseases has been working on behalf of affected children and their families since 2014. We provide direct financial support, create free family events (more than 2,200 family members were able to take part in 2019) to connect affected families and raise awareness of rare diseases among the general public. We rely on donations, legacies and patronage contributions to make this possible in the future.

Link KMSK donation flyer