Donation

For Noémie

What It's hard to imagine what Noémie has had to endure at such a young age. Unbearable pain, countless examinations and the doctors' repeated statement from the doctors: "We can't say where Noémie's symptoms are coming from." There are no treatment options, no pain relief and no prognosis. For parents, it is unbearable to have to witness how badly their daughter is their daughter is and not being able to do anything about it. Going on bike rides together would do them so much good, give them quality of life and let them forget the worries of everyday life. When Noémie was recently allowed to try out a special bike bike, she was overjoyed, beaming and full of lightness Lightness. "We haven't seen Noémie so heard Noémie laugh so "freely and heartily" with such a sparkle in her eyes," says Noémie's dad.

The The pregnancy and birth were difficult, which made the joy of her apparently healthy baby all the greater. Before discharged from hospital, the doctor discovered a small bump on Noémie's neck Noémie's neck. However, the subsequent ultrasound gave the all-clear and so the young parents were discharged with a supposedly healthy child. The Newborn cried a lot, was restless and restless and hypersensitive all over her body. When Noémie was 8 weeks old, kerstin noticed that her baby was hardly moving her arms symptoms were added over time - twitching of the head, cramps all over the body, Hyperextension. An MRI shows that behind the supposedly harmless bump on the neck Spinal canal, Noémie has spina bifida and needs to be operated on immediately and must be operated on immediately. The operation goes well, but the infernal attacks of pain remain.

Spina bifida - commonly known as "open back" is the most common cause of congenital physical disability. It is diagnosed in around one in 3000 children after birth Children after birth.

Symptoms with noémie
- Idiopathic Pain attacks
- Bowel, bladder, eating and swallowing problems
- Short absences
- breathing interruptions
- motor Restrictions